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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, June 23, 2011

You're 11 Months Old Today!

Yet another month is behind us. Today Nate is 11 months old. It is hard to believe that in just 11 months Nate has grown so big! Your physical and cognitive development is right on target for your age, which is a blessing, being that Nate has a visual impairment.

Nate loves long car rides. This is a very good thing, being that there are always several out of town appointments a month with specialists for myself, Nate or Timmy.

 Nate is a curious and adventurous boy. He loves to explore and has started to climb. If something that he wants is out of his reach, he will come up with creative ways to gain access to whatever it is that he desires.

On ocassion Nate will have Timmy to assist him in gaining access to whatever it is that he desires at the present time.
For brief periods of time, Nate is able to stand with little or no assistance. He has even started using his Chicco Activity Walker to help him walk independantly around the house.

Nate loves to eat. He has completely given up on eating baby foods. He prefers to eat Timmy's homemade puree dishes that Daddy makes special for Timmy. Nate's favorite foods are baked potatoes (white or sweet), cheese sandwiches and any kind of fruit or veggie. He dislikes scrambled eggs and tuna.

Nate enjoys hanging out with his big bro. Nate gets upset in the morning if I or someone else doesn't let him say "hi" to Timmy. And Nate's face lights up with a big smile in the afternoons when Timmy arrives home after school. Like us all, Nate dislikes the fact that Timmy keeps his hands in his mouth. Nate refuses to touch Timmy's drooly hands. So if Timmy has his hands in his mouth when Nate wants to interact with him, Nate will touch Timmy's arm and Timmy will immediately take his hands out of his mouth. Hmmm, maybe, wishful thinking I know, but just maybe Nate will be the cure all of Timmy's hands obsession. Yeah right!

You have the sweetest personality. But yet you are very opinionated. Everything with the world is just grand as long as everyone in your life stay on tract with your strict schedule. You have the cuties smile. And infectious laugh. You love to cuddle and give kisses.

Your favorite play things are balls, drums or any other item which you can hit on, a large stuffed kitty and Fisher-Price Bubble Gum machine, in which a ball is placed into machine and rolls out from the bottom. You also enjoy placing small items into a container and dumping them out.

Aside from spending time with siblings, playing with toys and eating, your all time favorite part of the day, be it nap time or just before bedtime, is to cuddle in Momma's arms and fall sound asleep. This is Momma's favorite time of the say as well. If it wouldn't be selfish of me, I would make a wish that you would never get any older or bigger. That you will stay Momma's baby boy forever. So I will cherish and treasure the gift of watching you grow into a curious, intelligent, energetic, funny, happy, Momma's boy!

Momma LOVES you Natie Cakes!

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