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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, February 11, 2010

Eye Surgery Today

Timmy had eye surgery today with Dr. Richard, so that Dr. Richard could get a better look in Timmy's eye socket to see exactly why we haven't been able to reinsert Timmy prosthetic eye.

Well of course this being Timmy. His body had created scar tissue in the eye socket. Why? Not sure being that when the prosthetic mold for his eye was made on Jan. 22nd Dr. Richard did absolutely nothing, but remove a conformer that was in his left eye and replace it with a fresh one until our visit with the occularist on Manday Jan. 25th.

Thankfully Dr. Richard was able to clean away the scar tissue, replace the eye and suture it shut with dissolvable surures, whic should dissolve within 2 weeks. But then again Mr. Timmy is also Mr. Hands. And he LOVES to self stimulate and rub his face/eyes. So we shall see just how long the sutures stay in place. Hopefully the full 2 weeks. This way Timmy;'s eye socket will have a chance to conform to the shape of his prosthetic eye and we won't have so much trouble reinserting the eye if it should happen to come out again.

Aside for a little bloody drainage. Timmy came through surgery well. And we were able to keep his blood glucose levels well managed. Of course if Timmy heard me say that, he would surely throw a wrench into the mix next time for sure! Praying there isn't a next time too soon into the future.

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