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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Friday, February 12, 2010

To A Very Special Little Man. He's With Me

"She's With Me" by Collin Raye is a song that he wrote for his granddaughter, who has a debilitating neurological disorder, which has yet to be diagnosed.

Even though this song is written from the prespective of a grandpa to his granddaughter, I feel that it serves as a tribute to each and every special needs boy and gril and to their parents, guardians or caregivers, who spend every waking moment with the endless energy, strength and patience caring for those whom they love without ever a second thought or regret as to their loved ones disabilities.

Timmy you are my inspiration, my hero, my morning Sunshine with your big bright smile and contageous laughter and my little man. You make me so proud with every thing that you do.  Mama loves you!

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