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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Sunday, February 14, 2010

Happy Valentine's Day

As a parent, one of the most enjoyable things about having a child in
school is the artwark that they make at school and bring home to share.

Here is a beautiful example of this. Timmy made his Dad and I a Valentine's Card. The report that comes from school, is that Timmy didn't complain once for having to use the glue to make this card. He usually HATES to use glue. And will have a Timmy Tantrum if asked to use glue.

Happy Valentine's Day Mama's Sunshine! I Love You!

Unfortunately the Pre-K class that Emily is in, there are children who do not believe in celebrating ANY holiday. So the teacher has to keep all holiday crafts, celebrations and talks to a minimal.

I do have a cute story to share that goes along with Valentine's for Ms. Emily. This is the story that Emily's teacher retold to us during our meeting on Tuesday to go over Emily's mid-year testing scores. (More to come on this later.)

In light of Valentine's the teacher decided to do some lessons on what it means to be kind. What is a friend. And what is love. During her lesson on Love as a class they were discussing different way that you can show someone that you love them. And talking about love songs. The teacher mentioned Barney the Dinosaur's theme song as a love song. And she asked the class for other love songs. Several other students mentioned love songs that were their favorite. Ms. Emily raises her hand with excited enthusaism and say "Mrs. Maxey, I know a Love song too!" Mrs. Maxey says "Ok Emily why don't you share." Emily replies "Love Stinks from ICarly!"

Happy Valentine's Day to all......

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