My photo
I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Sunday, July 31, 2011

Sunday's School Podcast - First Week of School

WooHoo, School Is Back In Session! Below is the very first Podcast of this school year. With the dreaded school budget cuts, which lead to the transfer of one of the Teacher's Assistant in Timmy's classroom, being placed in another school. The two Special Education classes have had to combined their webpages. With one person less to help in the classrooms, taking pictures for a weekly poddcast is less of a priority this year. But hopefully once the chaios of the start of school smooths itself out. Time will be found to take pictures for if not weekly, maybe bi-weekly podcasts.

Enjoy!

Tuesday, July 26, 2011

Two spoken words....

After a semi-sleepless night, being up with Nate who is teething and running a temp of 102+- from a possible ear infection. A long, stressful day from a trip out of town to Duke Eye Center for an eye appointment for myself. There couldn't have been a better end to my day. Or a better way to ease the stress, but the two spoken words from Timmy said so clearly and with excitement in his voice upon our walking into the house, "Home, MaMa!" This alone was enough to ease all of my stress and bring a big smile to my face. And prepare my mind and body to deal with Emily's hyperactivity long enough to get us through her homework for the day.

Saturday, July 23, 2011

Happy 1st Birthday Nathaniel!!!

                HAPP1st BIRTHDAY!!!

It's hard to believe that a year has come and gone. We have had a lot of laughter. And shared a few tears. You have come a long way physically, cognitively, and socially.

*You have learned how to play Pat-A-Cake and Peek-A-BOO.
*You love music and dancing.
*Your two favorite games are placing objects into a container and taking them out. And crawling after a ball that you roll across the floor.
*Your favorite foods are steak, baked potato with sour cream, applesauce, cheese sandwiches, squash, carrots and ANYTHING that brother Timmy is eating or anyone else for that matter.
*You absolutely LOVE bath time and swimming in the pool. But I have to say, you are the first and only baby that I know who insists on taking their washcloth into the swimming pool.
*You can pull yourself to stand and stand without holding onto something for a short period of time.
*You have learned how to climb onto the furniture and find climbing onto and getting down from a fun game.
*At your WIC appointment on Friday (July 22nd) you weighed 20lbs 1oz and you were 28 1/2in. tall.

Monday, July 18, 2011

Happy 6th Birthday Emily!!!


                HAPP6th  BIRTHDAY!!!


Sunday, July 17, 2011

Sunday - School Podcast - (Emily)

The title of this weeks podcast is "Rabbit Guy and Chicks."
Enjoy...!

Sunday, July 10, 2011

Sunday - School Podcast - (Emily)

This weeks Podcast is (Penguin Polito).

Thursday, July 7, 2011

2011 Chicago Trip


From June 29th - July 7th, Floyd and I went to Chicago alone for a little Rest and Relaxation. Floyd grew up in the Chicago area. So he took me around to see some of the sites. We toured Navy Pier, Saw the stained glass museum at Navy Pier, Saw buckinham Fountain, walked down to the lake front for awhile and did some shopping for the kids.

It was nice for a chnge not to have to stress over the daily tasks of the home, kids, Doc appointments. We had sooo much fun we have started to plan our next get away alone.

Sunday, July 3, 2011

Sunday - School Podcast - (Emily)

This is the 2nd week of Emily's class podcasts. This weeks podcast is titled "Best Part Of Me."

Enjoy....!

Blog Archive