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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, December 19, 2009

Poor Emily

Do you ever feel as though there aren't enough hours in a day? That is how we felt yesterday. Floyd stayed up until 2am making DVD's of the Holiday Preformance for Timmy's classmates and his teachers. I was just going to send the DVD's to school with Timmy being that we already had sooo much to get done. But Floyd felt that it would be nicer if we delivered them to the class personally. I was nice to be able to see the joy in the faces of the children and the teachers. One of Timmy's classmates, Laura enjoyed the DVD so much that she watched it over and over while we were there.

After leaving Timmy's school we stopped back by our house to have a quick bite of lunch before heading back out to Emily's school for her classes Holiday Party. Just as we were about to leave, I get a call from Emily's teacher asking that we come to get Emily from school because she was "really" sick! Poor thing! verytime it seems that there is something special going on at Emily's school we have something else that HAS to be taken care of or she gets sick. So no pictures or videos of her Holiday Class Party. :0(

Floyd goes to get Emily from school and takes her to see the Doc. My little girl isn't really little anymore. She weighs 50lbs! Yes at the tender age of 4, she is the size of an average 6 year old! Emily is very tall. She has definately inherited her daddy's genes. The nurse at the Doc office didn't get a heigh but I would be willing to wager a good guess that she is very close to 4 feet tall. She has a mild case of walking pneumonia. The Doc prescribed Amoxicilin for 10 days. It seems to be helping. She woke up this morning FULL of energy and with a good appetite.

With all of this going on, my sister needed help decorating the outside of her house so that it would look nice for my neice's Christmas party. Household chores that have been neglected for a few days that need to be completed. Kids to keep entertained so that they don't kill each other or get themselves into trouble. Preparations for Timmy's Nurses Appreciation Party on Sunday. Whew, I'm exhausted again just from typing this! :0)

ONLY 5 more days and Floyd and Emily will be on their way to visit grandma for a little over 2 weeks! The week of Dec. 21-27 Zachary, my 13 year old ADHD trouble maker (I say that with love.) will be spending time with his dad! I'm really looking forward to just mine and Timmy's time alone. With lots of cuddling and napping. Aaaahhhhh, if only I could fast forward time......

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