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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Friday, December 18, 2009

Holiday Preformance

Below is a video of Timmy's Class Holiday Preformance. It is a bit long, sorry. Mrs. Bishop, Timmy's teacher reads the poem from the book before all of the children preform their individual parts, which is basically a repeat of her description. To see the children preform just fast forward the video. Just remember to first mute the music on the site before starting the video. Just scroll down to the bottom to mute the music.

This is Mrs. Bishop's first year having her students put on a preformance of any kind. She is the ONLY teacher in our or the surrounding school systems to go to such extreme in using adapted technology with communication switches to help her students to be able to communicate and to preform this very touching Christmas program.

Even though some things had to be changed at the very last moment, due to a major power outage, which was caused by a traffic accident that caused power outages for most of our town. This being the first time Mrs. Bishop had tried anything like this with her students. They ALL did a GREAT job!

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