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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, December 9, 2009

Deck The Halls

My Husband has a thing for decorating for Christmas, Can you tell? There are 44,000 lights here. This doesn't include the 5,000 lights that were used to decorate Timmy's wheelchair ramp, which can't be seen in this picture. Thank goodness my parents live next door or there would be alot of complaints from our neighbors about all of the bright lights disturbing them. All of this wouldn't have been possible without the help from my dad, who is an electrician. It took 4 outlets pushed to their max to supply the electricity to run these lights. Thanks Dad!!!

1 comment:

ANewKindOfPerfect said...

It looks beautiful! I wish my husband would do that for our house. Heck, I wish he would hang the little bit that I do each year! LOL I love looking at it but hating putting it up.

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