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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, December 24, 2009

A Visit From Mr. Scrooge

I spoke with Santa earlier this week about coming to visit us a day early, being that Floyd and Emily are leaving early tomorrow morning, Friday (Christmas Day), to go to IL to visit with Grandma and family. Everyone had a great Christmas. The kids got almost everything that they asked Santa for.

Except for Poor Timmy he got more than he asked for. Mr. Scrooge stopped by and left Timmy with a yucky upper respiratory infection. We took Timmy to the Pediatrician this morning when he woke up with a temperature of 102.8! He prescribed Omnicef once a day for 10 days. At this point, Timmy's lungs sound clear, so hopefully this is just viral.

Poor thing he has been spitting up and has had a temperature as high as 105.1! Yeah I agree, YIKES!!! Luckily we were able to aviod a visit to the ER. We gave him several COLD baths, which of course "TimmyLocks" absolutely hated! And we rotated the doses of Tylenol and Motrin every 3 hours. So far he isn't requiring any oxygen, so this in itself is a good sign. I'm not a Doc, but I strongly suspect that he has caught what Emily had only 6 days earlier.

The worst part about this whole thing is when we had his script filled at our local Ma and Pa pharmacy the powder that was used to mix the medication expired 1/09! I have been using this pharmacy for over 18 years and have NEVER seen anything like this happen before. I would expect something like this from one of the mass marketing pharmacies, but not this pharmacy. Their reputation in our area is too good. I honestly want to believe that this was an oversight, but the expiration date is printed clearly on the bottle. So how could it have been??? So now that all of the pharmacies are closed for Christmas and no one is open tomorrow, Timmy will have to wait til Saturday to get any medications to help fight this yucky illness. I just hate that we didn't notice this error sooner. One lesson learned, when getting ANY medication filled, ALWAYS check the expiration date of the medication BEFORE leaving the pharmacy...

This is Timmy's 1st illness since his trach being removed. Hopefully this won't be too bad. Please, if you believe in prayer, Pray for no hospitalization!

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