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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Monday, December 28, 2009

Still Sick....

I've been a bit behind on proof reading my previous posts and getting them posted. SORRY! Things here in the past week has just been sooo CRAZY! And since Timmy gETTING sick on Christmas Eve, I have once again joined the sleep deprived population of parents of special needs kiddos.

Timmy is still sick. As of Saturday he has been requiring 2 liters of oxygen just to keep his oxygen saturations in the low 90's. I tok him to the walk-in at his Pediatricians office yesterday. She sent Timmy over to the hospital to have a chest X-ray. Thamk Goodness Timmy doesn't have pneumonia. His illness is viral. I was so scared that we were looking at a possible bout of aspiration pneumonia from his episode of spitting up on Thursday evening.

The Doc has increased his antibotic dose to twice a day and started him on Albuterol and Pulmocort nebulizer treatments.

As of today, I was able to get Timmy weaned down to needing only 1 liter of oxygen. He has also been laughing and enjoying sucking his thumb. So he is on the mends. I hope that the remainer of this illness passes fast, so that we can get down to enjoying our vacation from Daddy and Emily before time runs out.

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